pre mature

Amanda’s Schedule

Amanda’s schedule varies from time to time, but currently her day goes like this:

7:30am > Wakes up and requests the TV :)

8:00-9:00 am > Respiratory Therapy:

  • Nebulization with saline and albuterol
  • 3 sets of 4 breaths of Cough Assist and suction after each set
  • 15 mins of CPT (Chest Physiotherapy)
  • 3 sets of 4 breaths of Cough Assist and suction after each set
  • 10 mins of postural drainage
  • 3 sets of 4 breaths of Cough Assist and suction after each set

9:00-9:30 am > Bath

9:30-10:30 am > Physical Therapy administered by a professional, this is like play for her.  We talk to her and she laughs.

10:30-12:30 pm > Nap and feeding time (6 ounces in 2 hours).  She is put on BiPAP and if the day is nice goes out for a walk.

1:00-1:3o pm > Respiratory Therapy:

  • Nebulization with Saline and albuterol
  • CPT (Chest Physiotherapy)
  • 3 sets of 4 breaths of Cough Assist and suction after each set

1:30-2:00 pm > Oral Therapy: This is a combination of Beckman Oral Therapy, facial massages and exercises with the Z-Vibe that we have learned from various sources.

2:30-4:30pm > Feeding time (6 ounces in 2 hours).  Play time: Sometimes she sits in her tumble form chair and with the aid of arm slings she plays with Ipad, reads books and uses her switch adapted toys..

4:00-5:00 pm > If the day is nice we go out for a walk.

5:00-6:00 pm > Nap time on BiPAP.

6:00-7:00 pm > Respiratory Therapy (same as in the morning).

7:00-7:15 pm > Clean her body with moist towels and put her in her PJs.

7:15-7:30 pm > She is usually held and goes around the house and sees lights through the windows, we read books and play. *Update: We can no longer hold her without Bipap, therefore we don’t walk with her around the house.

7:30pm-9:30 pm > Feeding time (6 ounces in 2 hours)

9:30 pm> Sleep time. She is put on BiPAP.

11:00-7:30am > Continuous feeding time (14 ounces)

 

 

 

 

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