pre mature

Category Archive: Lately

Dec
10
2011

Theater, Therapy and More.

With Maecy's present :)

When I was in high school Steps, the dance school I went to, was my second home…even after high school and even now I still go there for different reasons.  This year they celebrated their 25 years and the theme for their end of year presentation was The 25 Years of Steps.  They invited alumns …

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Oct
03
2011

Amanda’s updates are back!

Holding hands with Valentina

I haven’t posted in a while and some of you are already asking about Amanda.  It is nice to know people care and actually read what I write.  I have been a little bit busier than usual that’s why I hadn’t had the time to update.  Juandi and I went to New York City for …

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Sep
14
2011

Amanda Update…

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Amanda is off antibiotics and her ear is clear.  We have been noticing however that she has bad mucus plugs almost daily and we find ourselves using the ambu bag and oxygen way more often.  She had a few months were she was barely needing them, but over the past two weeks it seems like …

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Sep
02
2011

Parties, getting better and snuggles

Juanma's birthday party

Last week when Amanda wasn’t sick she went to two birthday parties for a little while.  For the first one she had to dress up as character from Toy Story, but she went as a ballerina .  She came in really early and observed all the decorations and examined the other kids.  The next day …

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Aug
13
2011

Lately

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I will post details pictures and videos of Amanda’s birthday on a different post.  Now, I will update on the stuff she has been doing the last couple of days. Holding an SMA baby/kid can be challenging because their heads need to be facing to the sides so they don’t choke on their saliva, and …

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