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Category Archive: Party

Apr
02
2012

PARTY GIRL…AND SMA UPDATES

Ready to go shopping!

Over the last few days Amanda has attended two birthday parties.  She gets invited to lots and lots of birthday parties and as much as I would love to take her everywhere we still need to be cautious with public places and sick people around her, and we also need to think about how accessible …

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Mar
06
2012

AMANDA MEETS DORA

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Last week Amanda was invited to a Dora themed birthday party.  I knew she would enjoy it as she is obsessed with Dora thanks to Nick Jr showing it almost 24/7. But this birthday wasn’t only special because she got to meet Dora in person, but because it was the first time I see her …

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Dec
19
2011

Enjoying the Holidays

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Amanda doesn’t really grasp the meaning of Christmas yet, but she sure enjoys seeing lights and going to celebrations where she sees people and listens to music.  And we sure enjoy dressing her up, seeing her absorbing the world around her, and having some family memories to build up and look back to forever. On …

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Oct
26
2011

My Birthday Weekend

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Last year for my birthday we were in Baltimore-Johns Hopkins receiving the horrible news about Amanda.  We were supposed to be back in Panama for my birthday, but we decided to stay there a few more days to process the information we had been given before having to face everyone back at home.  We went …

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Oct
10
2011

Party Girl!

Amanda and Luciana

This weekend Little Miss Social had two birthday parties.  On Friday we went to Luciana’s 2nd birthday-Luciana is Amanda’s first cousin and Juandi’s goddaughter.  At first she was really happy looking at everything around her, but then she started to cry which until now is unusual.  The birthdays she has gone to so far, she …

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Sep
14
2011

Amanda Update…

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Amanda is off antibiotics and her ear is clear.  We have been noticing however that she has bad mucus plugs almost daily and we find ourselves using the ambu bag and oxygen way more often.  She had a few months were she was barely needing them, but over the past two weeks it seems like …

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Sep
02
2011

Parties, getting better and snuggles

Juanma's birthday party

Last week when Amanda wasn’t sick she went to two birthday parties for a little while.  For the first one she had to dress up as character from Toy Story, but she went as a ballerina .  She came in really early and observed all the decorations and examined the other kids.  The next day …

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Aug
02
2011

Out having some fun

With Sara and her mommy

During the last week Amanda has been to 2 small birthday parties, the pool with some friends and her pulmonologist. The Dr. was impressed with Amanda’s good health.  She joked saying she was the healthiest kid she had seen that day!  Nanny, nurses, mommy and daddy are doing a good job! We took Amanda to …

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Jul
10
2011

Out and About

With the Birthday boy

I need to start by saying it again: the EasyS Stroller and the handicap converted van have dramatically changed our lives.  I owe all this to my father; money certainly can’t buy happiness or health but it can make things a bit easier …Insurance is helping a bit too! This week Amanda visited her pneumologist …

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