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Category Archive: Sick

May
12
2012

STILL SICK

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Thank you for your concerns and prayers for Amanda’s health.  Fever seems to be mostly gone but seems like the cold is now moving to her lungs so we are needing to do treatments and lots of manual percussion to keep things moving.  She is still needing oxygen specially during her sleep but she is …

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May
11
2012

AMANDA IS SICK

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Amanda has been having high heart rate and tons of secretions since last Thursday but it wasn’t until Monday that she developed a fever and thicker secretions.  She had a tough Monday and Tuesday and still has a fever but yesterday and today have been a little bit better.  She is needing some oxygen at …

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Sep
07
2011

Relaxing Weekend

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Amanda is still on antibiotics and not yet 100%, so this weekend she took it easy and stayed home for most of the day.  We went for a walk around the neighborhood and we put her to paint in her slings for the first time, she had a stomach ache or some kind of pain …

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Sep
02
2011

Parties, getting better and snuggles

Juanma's birthday party

Last week when Amanda wasn’t sick she went to two birthday parties for a little while.  For the first one she had to dress up as character from Toy Story, but she went as a ballerina .  She came in really early and observed all the decorations and examined the other kids.  The next day …

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Aug
30
2011

Amanda is sick but doing ok

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Since yesterday morning Amanda was weak, fuzzy and not herself.  In the afternoon she had a fever.  After tylenol it went away but came back up and this morning she still had a fever and was not feeling well.  On Friday she had a bad choking episode during PT, I don’t know if it was …

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Jun
21
2011

Lots of stuff

Last days at old apartment

Since my last post lots of things have been going on.  Amanda has had some good days, and some bad days…this is SMA, I guess I have to get used to the bad times, learn to put them behind, and keep going. We finally moved! We are now in a bigger, handicap friendly apartment in …

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Jun
12
2011

Better? Or not?

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Amanda’s cold is definitely better; however, yesterday she did not have a good day.  Summary: she desaturated bad 4 times, 3 seemed to be because she was too tired, 1 seemed to be from a mucus plug, on 2 she needed oxygen, on 1 she also needed Ambu Bag, and on 2 she turned pale …

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Jun
10
2011

Update on Amanda

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We went to Amanda’s pulmonologist yesterday and she told us Amanda’s cold is probably viral, but that she looks pretty good given that she has SMA and a cold…Imagine not being able to breathe properly, not being able to move mucus from your nose, not being able to cough phlegm building up on your throat, …

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Jun
08
2011

Amanda seems to have a cold

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I have been sleeping with Amanda since Saturday–I did not leave Juandi, it’s just that her nanny is sick and we don’t like her sleeping by herself.  Saturday and Sunday she slept through the night and all was good, but Monday night she cried almost through the whole night and finally ended up waking up …

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May
15
2011

9 months and fever

Happy 9 months!

Amanda turned 9 months old this last Tuesday May 10th!  I picked a really cute outfit for her that day to prepare for the family photo shoot, but from the moment she woke up she was just not herself.  At noon her heart rate was higher than usual, her saturation oxygen levels were lower than …

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