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Category Archive: Family

Mar
04
2012

SURPRISE FOR AMANDA AND FAMILY BBQ

Still in my PJs Saturday morning.

Last Saturday I took Amanda to visit a toyshop.  This is the first time she goes to one and everything brought a smile to her face and mine!  My hopes were that she would “tell” me what she wanted me to get her, but I think she is too young for that or to understand …

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Feb
18
2012

AMANDA HAD FRIENDS OVER…

Playing before bedtime.

On Valentine’s Day Amanda had three friends over: Valentina, Gretel and Teacher Maecy.  She sat in the living room patiently waiting for them and when they arrived they had a blast playing with maracas, plastic eggs and many other fun things.  At one point either Amanda, Gretel or Valentina cried, after all, they are kids/babies!  …

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Feb
14
2012

Amanda is 1.5 yrs old!

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Yes, Amanda is getting bigger, smarter and demanding.  She turned 18 months on February 10th and we sang her Happy Birthday with a cake on Sunday.  She is getting bigger by the minute, she looks so big and grown up sitting in her Tumble Forms chair.  5 months ago when we first sat her her …

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Feb
07
2012

Amanda’s Updates

Helping to bathe Amanda

I’ve been quiet for a few weeks, but there has been a lot going on with Amanda.  She visited her pediatrician and pulmonologist and they both were very happy with her health this past few months.  Her pediatrician says he’s staring to believe that the AA diet is giving her more strength because he saw …

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Dec
27
2011

Christmas 2011

Posada 2010

Since we put up the Christmas Tree and the Christmas train this year we tried to take Amanda every night to see it and enjoy it.  Last week, we wanted to take her but then after her therapy she seemed tired and irritable, so we couldn’t do it as much as we wanted to.  On …

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Dec
19
2011

Enjoying the Holidays

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Amanda doesn’t really grasp the meaning of Christmas yet, but she sure enjoys seeing lights and going to celebrations where she sees people and listens to music.  And we sure enjoy dressing her up, seeing her absorbing the world around her, and having some family memories to build up and look back to forever. On …

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Nov
07
2011

Halloween fun and more!

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I love how Halloween is the perfect excuse to dress up our little ones.  Last year we dressed Amanda as a cow and she looked adorable!  Looking back at those pictures I can’t believe how much she has grown and gone through!  Last year for Halloween we had just arrived from Baltimore and we hadn’t …

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Oct
10
2011

Party Girl!

Amanda and Luciana

This weekend Little Miss Social had two birthday parties.  On Friday we went to Luciana’s 2nd birthday-Luciana is Amanda’s first cousin and Juandi’s goddaughter.  At first she was really happy looking at everything around her, but then she started to cry which until now is unusual.  The birthdays she has gone to so far, she …

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Sep
14
2011

Amanda Update…

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Amanda is off antibiotics and her ear is clear.  We have been noticing however that she has bad mucus plugs almost daily and we find ourselves using the ambu bag and oxygen way more often.  She had a few months were she was barely needing them, but over the past two weeks it seems like …

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Aug
19
2011

Amanda’s first Birthday, August 10th

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The first SMA Dr. we met said Amanda wouldn’t make it to her first birthday because she is a weak type 1.  He wasn’t a bad Dr, and I do not have anything against him.  The truth is, had we chosen not to help Amanda by getting her all her machines, she would not be …

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