pre mature

Mvallarino

Author's details

Name: Marcela Vallarino
Date registered: April 24, 2011

Latest posts

  1. ONE YEAR IN HEAVEN — May 13, 2013
  2. AMANDA’S LITTLE SISTER VIOLETA IS HERE! — January 23, 2013
  3. GOODBYE AMANDA — June 1, 2012
  4. VIDEOS — May 18, 2012
  5. STILL SICK — May 12, 2012

Most commented posts

  1. GOODBYE AMANDA — 16 comments
  2. VIDEOS — 13 comments
  3. Welcome, and our weekend getaway! — 12 comments
  4. Causeway and Smithsonian Visit in the Mandymobile! — 7 comments
  5. New Therapy for Amanda — 7 comments

Author's posts listings

May
13
2013

ONE YEAR IN HEAVEN

AMANADA BUENAVENTURA

  Amanda has been in Heaven for one year.  It really seems like yesterday I last kissed her, held her hand and found myself trying to save her life the morning of May 13th 2012.  There will be mass today and I appreciate all the people that have asked me about it, but for me …

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Jan
23
2013

AMANDA’S LITTLE SISTER VIOLETA IS HERE!

IMG_1749

Since Amanda passed away I really haven’t been able to post anymore.  Mainly because I have so many things and feelings on my mind that I wouldn’t even know where to begin.  Plus, this blog was about Amanda.  About her days and nights, her adventures, her disease, her struggles, her happiness, her personality and so …

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Jun
01
2012

GOODBYE AMANDA

Day before she passed.  Fell asleep during therapy.

Just writing the title of this post was so difficult.  I still can’t believe Amanda is gone.  There was so much we wanted to do with her, new clothes I had just bought her, new toys, new ipad games, a trip to Disney, her 2nd birthday, many more getaways.  We knew SMA was terminal, but …

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May
18
2012

VIDEOS

Most of you must already know that Amanda passed away Sunday May 13th early in the morning.  I will maybe write more about that later on when I am ready.  For now I just wanted to share some videos that I uploaded for those of you who are not my facebook friends.  There are many …

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May
12
2012

STILL SICK

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Thank you for your concerns and prayers for Amanda’s health.  Fever seems to be mostly gone but seems like the cold is now moving to her lungs so we are needing to do treatments and lots of manual percussion to keep things moving.  She is still needing oxygen specially during her sleep but she is …

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May
11
2012

AMANDA IS SICK

sick

Amanda has been having high heart rate and tons of secretions since last Thursday but it wasn’t until Monday that she developed a fever and thicker secretions.  She had a tough Monday and Tuesday and still has a fever but yesterday and today have been a little bit better.  She is needing some oxygen at …

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Apr
12
2012

EASTER 2012

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This Easter I wanted to do something special with Amanda as last year she was only 8 months old and we did nothing Easter related…she still doesn’t know what’s going on but she does enjoy much more activities.  Actually, last Easter I was sad I didn’t do any Easter stuff as I feared she wouldn’t …

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Apr
02
2012

PARTY GIRL…AND SMA UPDATES

Ready to go shopping!

Over the last few days Amanda has attended two birthday parties.  She gets invited to lots and lots of birthday parties and as much as I would love to take her everywhere we still need to be cautious with public places and sick people around her, and we also need to think about how accessible …

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Mar
20
2012

SOME GOOD AND SOME BAD

Right before going to the social area...

Since last post there has been a lot going on, good and bad,  and I have been very very busy and most of all tired.  Amanda’s nanny had knee surgery and will take a month and a half off; it’s only been 2 weeks and I am already missing her and her help so much!  …

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Mar
10
2012

A FEW FIRSTS

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Amanda got her first haircut.  Her hair wasn’t really long but I am a believer that if you want it to grow you need to trim it, plus it was pretty uneven in some places.  She behaved really well through the whole process and the end result is super cute.  She looks a little bit …

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